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October 18, 2010

The pink helmet

Monogrammed, of course.

No, we don't have any pictures of BabyGirl actually wearing her helmet.  That is because every single time I've taken her picture in it she screams.  Probably because she's in her car seat-which she HATES.  Did I mention, she HATES her car seat.  She doesn't seem to mind the helmet at all, thank goodness.  But she really only has to wear it when we leave the house so the opportunity for fabulous photo ops rarely arises.  Yes, you heard me right.  Read between the lines...I'm practically a hermit.  It's just entirely too much effort to get both BabyGirl and myself  packed up and looking good enough to go anywhere.  
I'm not ashamed to admit it!
Here are a few pictures of BabyGirl during her hospital stay.
You can see in this last picture that her head is elongated, a key element of craniosynostosis.  Over the course of the next four to six months the sides will push out a bit and the two ends will begin to move in creating a more rounded appearance.  Doesn't her scar look better than expected?  Because she didn't lose any of her dark hair, it really blends right in and you'd have to look closely to see that it snakes the entire length of her head.  You can tell the poor baby looks like a thirty pound toddler because of all the swelling after the surgery.  She's pretty cute even all swoll-up.  This should serve her well during her freshmen year of college when she puffs up from consuming too much beer and salty take-out.
Not that her momma would know anything about that...
We met with Dr. Glazier and his team again this past Friday and he thinks she's doing fantastic.  We go back again in six to eight weeks to take x-rays and scans of her head.  That way they can scientifically document her progress.  Pretty incredible.  She's one of only about 100 cases who've undergone this specific surgery and our surgeon speaks throughout the country on why his technique is more successful than the others.  One benefit he has is the use of a lab at Wake Forest that will custom make the titanium springs and bend them for each specific case.  Sounds pretty easy.  Like bending a paperclip.  But apparently it's really hard to do.
You'd have to be looking awfully hard and know what to look for to see anything amiss in this next picture of BabyGirl.  In person, it's a bit more clear where the springs are protruding.  The top of her head looks a bit lumpy but the shape is already improving!

We are so thankful for the outpouring of love and kindness throughout this ordeal and we'll continue to keep y'all posted on her success!

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3 comments:

  1. I am so glad to hear that W is improving! Her pink helmet is so cute and of course it has a monogram! Thinking of you!

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  2. Love her so much and so proud of the attitude you've taken through all of this!

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  3. She is adorable in all of her pink! bless her heart :) And bless the amazing surgeon for all of his talents!

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